You Are Not Alone: Connecting and Sharing to Empower. 2014 AHUS Meetups – Washington State

2014 aHUS Meetups

PLEASE JOIN US FOR A SPECIAL FORUM MODERATED BY

 Dr. Ruth McDonald

Seattle Children’s Hospital

Saturday, May 31, 2014

Time: 9:00 a.m. – 2:00 p.m. Central

Seattle Airport Marriott, Washington

 

(Reception dinner will be held on Friday, May 30, 2014 at 7:00 pm)

We invite you to help bring new connections, information and hope to patients and families affected by atypical hemolytic uremic syndrome (aHUS). In cooperation with The Foundation for Children with Atypical HUS, Global Genes will host aHUS Meetups. These regional meetings will bring together those recently diagnosed with aHUS and those who have been managing this disease for many years, to share information and strengthen their community of support.

As you know, dealing with a rare disease such as aHUS can be an isolating experience for patients and their families. The forum offers an opportunity to speak on several important topics relating to aHUS, including:

• Disease and treatment

• Challenges facing patients, families and caregivers

• Resources and support for patients, families and caregivers

• How to connect and maintain relationships with other patients in the aHUS community

Research has given us a better understanding of this disease and treatment has given patients new hope, but with this comes new questions and new challenges. Our goal is to make aHUS Meetups as interactive as possible to address the needs of this patient community. It is our hope that these meetings will help bring patients and families together to connect, share and empower each other as they learn about this disease and how to best manage it.

We hope that you will save the date and join us in this important effort to connect, share and empower the aHUS community.

Please visit: www.globalgenes.org/ahus to learn more, submit questions and R.S.V.P.

                                                       

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