Genes linked to Improved Survival for Pancreatic Cancer Patients

The Translational Genomics Research Institute (TGen) along with other key research institutes, which includes the Johns Hopkins University School of Medicine, the Mayo Clinic, and Memorial Sloan Kettering Cancer Center, found a new set of genes that can demonstrate improved survival for patients affected by pancreatic cancer after surgery. In addition, the study revealed that detecting circulating tumor DNA in the blood could offer a preliminary indication of tumor recurrence.

Dr. Daniel D. von Hoff, a TGen Distinguished Professor, Physician-in-Chief, Co-Director of TGen’s SU2C Pancreatic Cancer Dream Team, and Chief Scientific Officer at the Virginia G. Piper Cancer Center Clinical Trials at HonorHealth, stated in TGen’s article: “These observations provide predictors of outcomes in patients with pancreatic cancer and have implications for detection of tumor recurrence, and perhaps someday for early detection of the cancer”.

The study, Clinical implications of genomic alterations in the tumor and circulation of pancreatic cancer patients, was published in the journal Nature Communications on July 7th.

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Support the CAL Undiagnosed Diseases Research & Collaboration Network Act

Source: The Global Genes Project

By Heather Long

During the week of April 9, 2013 Representative John Carter (TX-31) is planning to re-introduce my son’s bill – The CAL Undiagnosed Diseases Research & Collaboration Network Act.Image

Prior to the re-introduction, other House of Representatives members are being sought to sign on as original co-sponsors. The more Representatives that sign on as original co-sponsors, the better. Please contact your Representative in Congress and tell them that you want them to be an original co-sponsor to Cal’s Bill and urge them to contact Representative John Carter’s office.

If you don’t know who your U.S. Representative is, go to and typing your zip code in the box at the top right hand corner labeled “FIND YOUR REPRESENTATIVE.”

One of Heather Long’s three children (Cal) passed away in 2006 at five years old to an undiagnosed disease. Heather was told that her son’s death was likely caused by a very rare metabolic disease, and she has since focused her energies on being an advocate for patients suffering from undiagnosed and rare diseases.

In 2008, Heather co-founded a nonprofit organization, U.R. Our Hope., that assists individuals and families who are on the journey of finding a diagnosis or are navigating through the health care system after a rare diagnosis. In 2011, Heather co-authored H.R. 2671- The CAL Undiagnosed Diseases Research and Collaboration Network Act, which was proposed in the 112th Congress and is scheduled to be re-introduced during the current 113th session. And recently, Heather proudly joined the Global Genes Advocacy Leadership Group.