by Assunta Ginanneschi
The aim of this blog is to arise awareness around specific rare diseases and create a network of experts, competences and resources around them. Our role is to facilitate the communication between patients, associations and physicians.
During our networking activities we came across the dissertation of a young Italian psychologist, who focussed the first part of his thesis work on genetic tests and their impact on patient private and professional life. We asked him to collaborate with us and he accepted — welcome on board, Stefano! Continue reading