Congress is in the process of making pivotal decisions on biomedical innovation that may affect the rare disease community for decades to come. EveryLIfe is proud to have our main legislative initiative, the OPEN ACT HR 971, included as part of the draft 21st Century Cures legislation, but EveryLife need your help to make this bill a reality.
The OPEN ACT creates an incentive for companies to repurpose existing therapies for rare disease indications. We believe this bill has the potential to DOUBLE the number of treatments available to rare disease patients. The OPEN ACT is part of our broader Cure the Process 2 campaign, an EveryLife initiative to improve the drug development process and spur innovation for rare disease patients.
There are four ways you may take action:
1) Contact your Representatives in Congress and ask them to co-sponsor the OPEN ACT HR 971
It takes less than 3 minutes to send an email to your Member of Congress – click the link above, complete the form, and hit send. It’s that easy.
2) Join NORD, Global Genes, and the nearly 150 organizations who have signed-on to support the OPEN ACT
Email firstname.lastname@example.org to sign-on.
3) Endorse our full Cure the Process 2 campaign
Click to read more about our campaign and help spur the development of lifesaving treatments.
4) Already supporting? Please share this action alert in your organization’s newsletter, website, and social media pages.