An Invitation To Join Our Upcoming Webinar!

From PatientsLikeMe & the AKU Society.
Don’t miss out on the chance to find out everything you need to know about our AKU community on PatientsLikeMe.
On Wednesday July 10th, we’re holding an exclusive webinar with PatientsLikeMe. It will allow AKU patients and caregivers the chance to get all their questions answered about our online community.Over 70 patients and caregivers have signed up to use the AKU community on PatientsLikeMe already. It allows you to take control of your disease, while connecting with others going through similar experiences.

Not only does it have an active AKU forum, but users are finding great use in the tools that PatientsLikeMe offers. Those signed up can track the progress of their AKU, create health profiles and evaluate their own treatments. Everything you do on PatientsLikeMe can be printed off for your doctor to see too.

The webinar will highlight the resources and tools available to you on the community. It will also show you how your input can help countless others with AKU learn from your experiences.

What the webinar will cover: 
• How you can connect with others who have AKU and share experiences in the AKU forum
• How to create a Doctor Visit Sheet to track your health between appointments
• What you can learn from the symptom and treatment reports
When: Wednesday, July 10th, 2013

Time: 4pm (GMT) Duration: 30 minutes

•  Liz Morgan, Head of Community, PatientsLikeMe
•  Jenni Thorburn, Online Communities Officer, AKU Society
Attendees can look forward to a guided tour of the AKU community from Liz, who will discuss how to use the site and what benefits it offers. Liz and Jenni will then hold a question and answer session, giving you the opportunity to find out all you need to know.

Register now and let us know you’re planning to attend. Do so by emailing Liz at, including any questions you may have for Liz and Jenni during the webinar.

After registering, you will receive a confirmation email containing information about joining the webinar. It will include a link on where to access the webinar on the day.

If you’re not already using the AKU community on PatientsLikeMe, why not sign up now and have a look around the community. 

We hope to see you all there!

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